Introduction

 

I will have to begin this new journey with the explanation I am not a professional website developer nor did I expect I would own a website in my lifetime; so please be patient with me as I learn about this tool and how it operates!

 

 

If you have found me and this little website then it is highly probable you are struggling with a similar issue, sensitivity to ECO-friendly lighting. My particular problem started a couple years ago with a change in my work environment to a different type of fluorescent lighting, I developed terrible eye strain and headaches that would not go away until I spent 2-3 days away from the environment. I had no idea what was coming a couple years later with LED lights however even at the time under this fluorescent lighting I could not continue my work effectively. My saving grace was discovering how anti-glare coating’s 99% protect me from the effects of florescent lighting.

Unfortunately, in September of 2012 (The month I married my beautiful and supportive wife) my employer replaced the florescent lighting with the newest generation of ECO-friendly lighting most people have still yet to experience, overhead LED bay lighting. There is no description for the pain these lights cause me. As all of our new computer monitors change to LED back lighting, data phone’s , street lights, local business’s and car lights gradually change over to LED lighting  my life is rapidly becoming reclusive. I have hoarded incandescent light bulbs because of the light bulb legislation and I continue to rack up medical bills desperately searching for an explanation. I am blessed to have been approved for short term disability however I am holding my breath each time it needs to be re-approved, I cannot count on this supporting my wife and I forever. Where will I work if I cannot return to my current career? Where will LED light’s and computer monitors not be used?

Since September of 2012 when these LED lights became apart of my everyday life, making it impossible for me to function at work, I have been researching, making phone calls and quite honestly slowly going into debt. This is how we have come to the creation of this website. It is my desire to not only continue my search for answers but to share what I have learned and for others to share what they have learned as well. There are many topics to light sensitivity and many people with varying degrees of sensitivity to different types of light, this journey is complicated and long so look for post’s forthcoming. The topics are many and the information, link’s to articles, conversations with medical experts and various other people experiencing the same issue are ongoing. I will try to keep my editorials concise and to the point with the most relevant information I have found to date.

While I work on making this site user friendly and figuring out how to create tabs and provide link’s for everyone please join in the discussion or simply tell your story!

Peace and happiness,

Jesse

 

 

46 thoughts on “Introduction

  1. J:
    Found these sites by following words posted on Forum site:

    http://eclipse.lupusuk.org.uk/news/spectrumcampaign.htm

    https://www.facebook.com/permalink.php?id=163627130427921&story_fbid=123509557805434

    http://www.spectrumalliance.co.uk/

    http://cafod.force.com/donate/candlelightfunddetail?cid=701C0000000a0sUIAQ

    Just in case you didn’t see these, I wanted to share. These will be great links for your site.

    We really ARE NOT alone. TWO MILLION PEOPLE AFFECTED IN THE UK.

    Thanks for doing this site.

  2. J,
    I suspect that our problem is due to some nervous disorder. Dont get me wrong, i am talking for minor disorders like the restless leg syndrome. Are you one of these people that cannot sit for still in a chair for more than 5mins? Do you feel an urge to move constantly? Are you having problems stting in the plane and want to get up?
    I am currently practicing relaxation exercises because i face the above problems (even though i eat healthy and exercise). At the moment all i can say is that the use of a smartphone got easier for me. I suspect i suffer from the led flicker and while i still get eye strain and headaches from prolonged use at one sitting (that’s 1-2 hours for me) with the phone at full brightness, the recovery period for my eyes is MUCH LESS. In the past the recovery period for my eyes was maybe a week, now it is just a few hours. That’s a start! I will let you know how it goes.

    • That does not mean that companies should not engineer healthier devices. Most people i know using LED screens, while not affected as severely as we do, they do feel the displays less comfortable than their old screens.
      EIZO has posted a report comfort putting empasis on pwm on LEDs.
      http://www.eizo.com/global/library/basics/eyestrain/index.html
      Also Benq for the same.
      http://gadgets.ndtv.com/laptops/news/benq-launches-27-inch-gw2760hs-flicker-free-monitor-in-india-for-rs-20-000-342417

      • Welcome Exandas, interesting inputs on relaxation technique, not sure I personally have as much of an issue with the restless syndrome you are facing. What type of relaxation exercises are you doing and how often?

        • Jesse, is your diet rich in sugars or foods with high glycemic index (GI)?
          Along with relaxation exercises i took care of not eating foods with high GI as my doctor instructed me.
          In the Apple forum i wrote that i could tolerate a Sony smartphone, but i realized that i can tolerate any display much better than in the past.
          My doctor also told me that nutrition high in sugars affects the retina and the eye blood vessels, and that maybe this is the cause.
          I am really impressed with the improvement i see in myself, but i cant say that i can fully tolerate the LED displays. My doctor also told me that i will be able to see the first results within 3 months of proper diet (which proved true), and the full effect in 6 months.
          I read in the Apple forum that you are going to the gym. Are you also taking care of nutrition?

          • Interesting I don’t remember seeing this post, sorry about that. I am really taking care of my nutrition right now and eating very low sugar, interesting info you have there on how sugar affects the eye, that is my first time hearing that. How are you doing now?

          • Hi Jesse, i think i can tolerate smaller devices better. Actually i am now using Samsung Galaxy Grande Duos as my main phone (which is a MAJOR improvement) but i work with an old trusted MBP since i cannot use any modern laptop for a long time. I still get the sore eyes after 30 min to 1 hour of continuous use of my smartphone and i need a couple of hours to come back to normal, but at least i can work with a mobile device. I am usually on the move and reading emails on the phone and working on laptops is important. But definitely i do get sore eyes and mild headaches, i cannot use any modern mobile device or laptop the way i used the older (2010 and back) models.
            The strange thing is that sometimes i am totally fine while other times not. I cannot explain it, i am still looking for a permanent solution.
            I am experimenting to see what exactly is making me feel better. Is it nutrition, is it relaxation exercises, is it maybe a combination?
            My doctor also told me there is a huge increase of patients complaining of headaches, and he is now starting to suspect that it may be due to changes in the artificial conditions but i don’t think the regulatory bodies in the EU where i live will respond, they seem only to care of energy consumption.

    • Sounds like you might also find looking into ADD or ADHD interesting, adult onset isn’t rare. I was diagnosed with ADHD during college and I’m not the picture of what you would typically think of when you hear ADHD. It sounds like you are self medicating with coping mechanisms, which is what I was doing. There is even some evidence that the higher your IQ the more coping mechanisms you come up with to be the high functioning adult that you are.

  3. I hate LED light, it’s not lighting. It colors the area. I feel so unsafe passing a police car flashing LED lights, I can’t see the police officer!

  4. I’ve always lived with floaters but with the new LED lighting at the library the floaters turn bright white instead of black. There’s not a day I go to work that I say I wish I could wear my sunglasses at work. On the computer screens I always look down into the screen instead of head on. Good luck with your site Jesse!

    • Hi Patti and welcome:) What do you mean by “floaters”? Interestingly enough sunglasses do not help me and some polarized glasses actually magnify my issue. Thank you for commenting, I truly believe there needs to be a place for people to discuss this issue and I created this site so we can help each other.

  5. Hello very cool web site!! Guy .. Beautiful .. Superb .. I’ll bookmark your blog and take the feeds additionally?I am happy to find numerous helpful info here in the publish, we’d like work out extra strategies on this regard, thank you for sharing. . . . . .

  6. Excellent website – so glad to have found you! I have been outraged at the stupidity of councils across the globe introducing LED street lighting. They haven’t even got the common sense to put orange covers over them to move away from the dangerous end of the light spectrum in which LED lights ted to sit. In my area we are now blinded to the extent you have to drive with the sun visor down and sun glasses on at night. You cannot distinguish between on-coming cars’ headlights and LED streetlights and the deepened shadows caused by these lights are sending your poor pupils into overdrive. I found out about how dangerous LED street lights were when I started to get headaches daily after the lights were changed in my area of the UK (to the tune of £18 million GBP of tax payers’ money!!!) and looked it up. This type of lighting will cause irreversible damage to the retina and you will eventually loose a lot of your sight. These councils are uneducated morons and in the next decade or so will, no doubt, be inundated with law suits.
    My current solution is to trial the use of yellow or amber lenses for night driving – anything to try to alleviate the headaches. Jesse, I have so much empathy for you – keep up the good work x

    • Nice to meet you Dee Bee, I have heard Europe is much worse from some people there. I agree with you on all counts, I too have major issues seeing at night and when I rarely do drive at night it is with my visor down. I don’t think science has definitively proven LED lighting can damage your Retina however from what I have read and my experiences I wouldn’t be surprised if there are long term damaging effects. As with any new technology the damage needs to be wide spread before anyone pays attention, not the best method to live by but it seems to be human nature to put progress before safety in our world. I appreciate your empathy and I have nothing but empathy for anyone who is experiencing the same as myself, it is a terrible future to imagine where your work and social life become so limited! Good luck with the lenses, I would suggest working with a good optometrist who can help you trial some anti-glare blue blocking coatings like Crizal Provencia and consider prism as well even if they say you don’t need it (They should have a set of test lenses with prism you can try looking through to see if it relaxes your eyes). I wish I could spend more time working on this site and updating but my sensitivity has been getting worse, even my CCFL monitor bothers me these days after a couple hours. Good luck and please stay in touch through this site:)

      Jesse

  7. I researched the subject of fluorescent lighting, ECO-friendly lighting and LED lighting toward the end of last year and the beginning of this year. I must have stopped around May, after being terminated, which is around when it seems this site came up. I may not have felt as crazy at the time if I found it, but regardless, it’s good to know I’m not alone.

    My story has become something I dreaded having to repeat, as the judging attitudes of even most members in my immediate family, unfortunately, drove me to a state of depression and insanity. I worked at Costco Wholesale for almost 3 years before I began to experience adverse effects from “something.” In November of 2011, the store received a new General Manager. She had different ways about keeping the store clean. More specifically, she would require the floors to be polished with the Zamboni in the am and pm of every day. With our previous GM, this would only be done a few times a month. The importance of this factor is in the reflective surface that the floor became: it was so well-polished that you could see, while somewhat blurred, an exact reflection of the ceiling overhead lighting jetting upward. As the months progressed, my symptoms began. As soon as I would enter the building, my head would “clog up.” One or both of my ears would feel closed in a way that I could only describe as being similar to being on a plane: the feeling of wanting to pop your ears, but being unable to. This clogged ear/filled head feeling would persist for hours, and the more time I spent in the store, it would lead to massive headache, accompanied with eye-strain, nausea and dizziness. The effects started around the Spring of 2012 and I just tolerated it.
    Until September came around. Dealing with the clogged ears and piercing headaches came to an abrupt end in the middle of September. I was scheduled for the usual 8 hour shift, but halfway into it I couldn’t bare the symptoms any longer. I talked to my manager and explained that I’ve been having these symptoms for most of the year, and inquired as to whether or not any changes have been made to the store. Just to note, I did bring my symptoms up to other managers throughout the year as well, having been told it is probably just allergies, and going with that assumption. He told me he was not aware of any changes and I said I would take a break and see what happens. After resuming my duties, it wasn’t even 10 minutes that the symptoms returned, forcibly even. I walked toward one of the CDS Samplers to try and tell her I needed help, but as I attempted to talk my words slurred and I fell to the ground unconscious.
    Everything from here is a cluster-you-know-what. Going to multiple doctors who pay no attention to when you’re talking, order some expensive tests and then offer some new experimental drug that isn’t FDA-approved and came out a year ago. Cardiologist, Neurologist, Neuroophtamologist, Ophthalmologist, Otolaryngologist.. seeing these specialists over the course of months who can’t determine a that there is a thing wrong with me. In the first month I was put on short-term disability, but they stopped covering me after the first week of November because of whatever reason they could give me; I had to fight this ridiculous insurance company through hours of phone calls, faxing documentation etc etc until it was approved 3 months later and I received retro pay.
    Because of the short term disability not covering me, I needed to go back to work regardless of what was happening to me. Maybe because I’m only 23 they assumed I lived with my parents or something, but I don’t. I told my doctor I can’t be off work while trying to figure out what was wrong, so he wrote me a restriction stating that I can’t work indoors, as there are cart-assistant or gas station attendants who work outside. I received a letter afterward essentially questioning the physician’s restriction and telling me “no.” There was another 3 weeks of BS, phone calls etc, but with my back against the rope I filed for unemployment. Shockingly, I received a call from my GM about a week later asking if I wanted to be a cart assistant. Just to be clear, part of their reasoning for not being able to adhere to the doctor’s request dealt with “this needing to be signed off by this person at corporate and then verified through etc etc..” Needless to say, there wasn’t any of that.
    Unfortunately I still experienced symptoms. It was hard enough to be working in January/February’s single digit/below 0 windchill temperatures, continuously with my break being outside as well, but on top of that, the little time I had to be in the vestibule in order to return the carts.. I would still feel the onset of my previous symptoms; I came to realize they were the worst at night, when I was out in the dark mostly and then returned to the obsessively brilliant gates of the store that is Costco.
    Throughout this month, I would go to work just to experience these symptoms, but what was worse is they returned home with me as well. I had to barricade myself under blankets in a dark room while wearing sunglasses because my eyes hurt so bad that any kind of light was very painful. This wasn’t able to go on much longer. In the beginning of February, I went to work still sick from the previous day, but I couldn’t stay. During the first hour I was so nauseous I vomited. My body felt so weak that I was almost passing out in the parking lot. I couldn’t do it anymore. I informed my manager that I was getting sick still just as before, and that I needed to leave and would not be returning until it was figured out what was happening to me. Obviously that didn’t matter. They were accusing me of no-call no shows and told me I’d have to redo all the FMLA paperwork etc.. even though, as the future revealed, for everything else pertaining to this issue (insurance, docs, etc) I lost coverage because my first FMLA incident was deemed to be the same as the second.
    My “secondary leave” paperwork wasn’t sent to me until April. At this time, there was still nothing figured out, and my doctor would not sign any more papers because he already did. Because of HIPAA laws, no other physician was willing to do so. To make matters even better, my primary went on medical leave during this mess. I was told by my manager I would be terminated if I can’t give them the paperwork. The specialists wouldn’t touch the paperwork. Thus, Costco terminated me.
    Suffice it to say I learned a great deal from all of this. I learned that you never want to rely on doctors for anything. I learned that medical insurance is the biggest waste of money and is a huge scam. I have over $5,000 in medical bills, and even though to some “that’s not much,” paying 5 grand for absolutely no service rendered is thievery. I learned that as a worker in this country, you are 100% expendable.
    The conclusion to this novel is not a happy ending, unfortunately. The medical debt has destroyed my credit score. I never even had one to begin with. Credit cards are the biggest sham of them all, so I didn’t buy into it. Hell I worked and paid my way through my first 2 years of college so I wouldn’t have to pay a university 20 grand for the same useless general education requirements. I had a plan for myself, as I saw how my family was being crippled by poor financial decisions. I was a debt-free, working young mind who wanted to save more money to finish at a university.
    Now? I can’t get a job anywhere. My unemployment claim was approved based on my situation, first check was electronically deposited immediately… next day, after I used it to pay rent and bills as soon as it was in, Costco whines about it and gets their way. Claim denied. Give us back our money! My appeals failed, even with medical documentation. And being broke, obviously I couldn’t afford a lawyer.
    The only jobs I’ve been able to get are scams. I’ve spent days (I mean days in terms of the amount of hours that have been put in, not an hour or two here on this day, a few the next etc) filling out job applications, sending resumes, emailing prospects… even desperately searching the scam-infested recesses of the “work from home” jobs part of the internet. My only hires are telemarketing companies. One who was contracted by big insurance names like United Healthcare, with my job being to tell elderly people with chronic illnesses that their claim wasn’t approved because of some L’PUC code. Or a sham newspaper teleservice position that cold-calls people to give them free advertising inserts, while at the same time collecting address information and selling it to other companies. Luckily I had residual income to live off of still, because I couldn’t stay at either of these places long. I don’t care how important money is, I felt terrible making any sort of money off of these people. Everyone in my family tells me “it’s just a job, you just do it and get paid. You’re not the person screwing those people over.” What kind of mentality is this? Is this the American mindset? It’s no wonder this country is so messed up.
    Anyway, that’s my story. I was fired because nobody thought it would be a good idea to test out the effects of artificial lighting on human beings. I think something similar happened to the Romans with lead. I’d be an idiot to think we actually learn anything from history though, right? Maybe in time, more people will be affected. Society seems to overlook the fact that we are indeed animals who evolved in a naturally-lit habitat. When your body is in pain, you don’t tell it to shut up by giving it Excedrin. The PharmoCorporate society we live in is horrible.

    PS: I wear FL41 filtered lenses to help with the pain. They help, but unfortunately I think my exposure to these lights over the years has compromised my vision in an irreparable way. Driving at night is especially difficult, and dangerous if it’s raining. Good luck to anyone else who is in the same predicament. I feel your pain, truly I do.

    • Welcome and THANK YOU for telling this story!!!

      It is important to share our experiences here for at the very least we can feel like we are not alone. I would not wish this condition on anyone and I have been soooo lucky with insurance thus far and I live in fear I will one day be in your position without warning, I have been trying to prepare for this very outcome. When you start thinking about what type of work you could actually do without having major symptoms the results are dismal and no one seems to really understand this. I am very sorry your family has not supported you, while I do have my family’s support I can say my wife is the only one who truly has seen and understood what I am going through. I believe I may be able to help you some if you are interested, no guaranties but I have some information to share with you after reading your story. My heart goes out to you for what sounds like having to go through this alone without any real support, I fear your age has people questioning the validity of your situation. I also agree that drugs are not a great way to treat our problem and could potentially make it worse or cause long term damage. I am currently going through trials of migraine medications. I do not believe any of which have been engineered to treat the specific issue we have….I am willingly going through this though because if something does work I must share that information with everyone I can, I fear the possible consequences of being a guinea pig.

  8. My 12 year old son is extremely light sensitive. Just this past week I had him tested for Irlen Syndrome and he tested positive. I am getting him custom lenses that he will wear in his glasses. The testing person also said that he should wear these special glasses with a hat or visor that is dark under the bill. Please, look into Irlen Syndrome. You may find help with custom tinted lenses.

    • I am not sure if I posted about Irlen Syndrome, I may have posted a link to their page. I did explore this and the interesting thing is most anyone with light sensitivity would test positive for Irlen. I truly hope they can help your son, I decided not to go down that path for several reasons. I have tried many different tinted lenses and found that rose colored lenses do help however not very much with LED lighting, only fluorescent. Also, you could research FL-41 tint by the moron eye center, it is a rose colored tint. I will tell you that I tried these lenses and the most interesting part is how they use an anti-glare coating over the tint. I have found in my experience that an anti-glare coating even without any type of tint helps more than tint itself, tint does add some “muting” of sensitivity but it is minor in comparison to the effects of Anti-glare coatings. I would suggest experimenting with Crizal Provencia under fluorescent lighting, it is the most effective for me even though it does not make LED lighting tolerable. Not to say everyone’s symptoms or root cause is the same however I have helped several people with this exact same advice, it is worth a try. For example, I do not need to wear any type of visor under fluorescent lighting with my anti-glare coated clear non-script lenses and can usually spend 3-5 hours depending under the lights.

  9. Hi Jesse

    I posted the following message on the Apple forum but it got removed. Do you happen to know if subscribers to the group received it in email form, or if it got removed before that stage? I haven’t had any feedback anyway, but I am keen to write something about this problem. If you or anyone reading this site can help, do let me know.

    “Hi everyone, I’m a freelance journalist and am looking into trying to get an article commissioned on this subject. What I would need though is:

    - People with problems who would be willing to be interviewed (especially if UK-based though I could look at doing something for the US market). A mix of moderate and severe sufferers would be ideal.
    - A qualified medical/eye practitioner and/or a computer expert who could comment – I think one or two have posted on this thread?
    - I recall a link to a Spanish study which found that LED screens were damaging eyes – does anyone still have this link?

    Anyone who can help can contact me via my website – garethj88.wordpress.com.”

    Best wishes

    Gareth

  10. Hello thanks for creating this great website. I’m Interested In these Crizal Provencia glasses. Is this just a coating you can get from any glasses store? I have been suffering with this problem for 6 years. It started with playing my Sony PSP then the fluorescent lighting at my work. The fluorescent lighting at my current job still ruins my life even with the fl-41. I did get some relief from 160 mg of bilberry. It seems to help with the flicker Issue we all have. Apparently Carnosine helps as well I can’t get any because I live In Canada. I’m gonna try and Import some. As for screens It seems I can’t win no matter what I do. It’s probably because I’m so strained from work all the time. I have been applying for jobs In warehouses and factories even though I don’t wanna go back to that because they have less fluorescent lights. I have my computers hooked up to my Plasma screen. I find that helps the most. I still don’t get much computer time anymore though. I miss playing video games but my eyes are always ruined. I think the best part of my FL glasses Is they sit so close to my face. It’s almost like wearing a hat. No light gets through the top. This site has a lot of Information on flicker from screens and fluorescent lights. http://www.conradbiologic.com/articles/SubliminalFlickerI.html This Is where I learned the bilberry and carnosine from. I also have a YouTube channel where I have made some videos on fluorescent lights. I’m sure If you type fluorescent lights crazy picard you will find me. I have made about 4 – 6 videos on the subject. Only because It has ruined my life. I will continue making videos and researching until I get some rest from this crazy problem. Again thanks for this awesome site I will continue to come here.

    • Welcome Jason, I will send you an email directly about the locating the Provencia coating. I am sorry to hear that you have been suffering with this for 6 years, I completely understand and I hope by bringing people together we can solve or at least help mitigate this problem for as many people as possible. I too tried the FL-41 tint, I am not a fan of the tint in the sense that it really does much of anything to be honest, and I will explain why. When they sent me the FL-41 tint they applied an anti-glare coating to the lens’s which was the same one I was using without tint already, there was no dramatic difference with the addition of the rose colored tint. The anti-glare coating seemed to be the real cause of my reduced symptoms under florescent lighting and tinting seems to help relax the eyes slightly however by itself is useless. In fact, polarized sunglasses increase my symptoms under fluorescent lighting. There are varying degrees of sensitivity when it comes to light and there are some people who gain huge benefits from colored lens’s such as with Ireln syndrome however most people IMO may not have this exact syndrome but may exhibit several of the symptoms when light sensitive. With Provencia I can spend 3-4 hours around fluorescent lighting before beginning a mild headache, unfortunately it doesn’t take much for that to turn into a migraine with just a little bit of LED exposure afterwards, are you sensitive or had much exposure to new LED back lighting or environmental lighting? I would bet the PSP is LED back lit for certain. I am aware of Conrads website, I have spoken with him and my take away was that some of his research is dated with the onset of the LED light bulb. It is interesting you mention a Plasma screen because I am using my Pioneer kuro 4280HD model right now, I can use it for a few hours before having issues, I can also use it for video games with my glasses on. Of course it is 7-8 years old and will not last forever and newer Plasma’s do bother me, ugh! Glad you found this site and I will email you directly right now about Crizal, Jesse.

  11. Dear Jesse,
    I went to a neighbor’s apartment yesterday, to view his new LED ceiling lights.
    I became so dizzy that I needed assistance to a chair and eventually to my apartment.
    After about 15 minutes, the symptoms went away.
    I have no prior history of dizziness so I’m assuming it was the LED lighting.

    • Hello Betty, welcome and I am sorry you have found yourself here due to experiencing this issue. It is not an easy issue to deal with and not enough research has been done to understand it so you will find there are a lot of people discussing it without any diagnoses besides Migraine. It probably was the LED lighting, did you feel disoriented and out of sorts? When I get Vertigo I usually feel it as you described, needing to sit down and recover. Where do you live roughly? One way of testing whether LED light’s are an issue for you is driving at night while behind cars with LED tail lights, these bother me during the day but at night you will know immediately if they are a problem. Please let me know if there are any further questions I can answer or assistance I can help provide.

      Jesse

  12. Thank you for your website! I am CONSTANTLY looking for more information about light sensitivity and the ban on the “old” light bulbs (aka my preferred bulb). I only read about 75% of the posts so forgive me if I am repeating something that was already mentioned.

    I am a female in my mid 30′s and have battled migraines for more than half my life now and severely for almost 10 years (where they are debilitating). I quickly found out that lights were a large “trigger” for me and that I have photophobia. I actually went to an ear nose and throat doctor because my vertigo became so severe and I needed answers fast! Coincidentally after numerous tests, on a follow up visit, the physicians assistant said that I had a vestibular ocular disorder. (Btw I have 20/20 vision if anyone is curios yet my one eye had not stop wed twitching for three months at this point). He said it’s more common and often misdiagnosed. The treatment is actually an anti anxiety drug (klonopin or clonazepam in the generic form). It’s usually a very small dose since it’s not used for “anxiety” but after time (year or so.. Depending on the person) you may need to increase the dose because you build up an immunity to it. This helped me dramatically for most of life’s obstacles (shopping in a target with lots of lights and reflective floors, shadows from trees, smiling for the “occasional” photo… And I do say occasional because I can only take but one or two flashes and I’m done, going to a theme park, watching a concert, etc).

    I also LIVE in my oversized polarized sunglasses when I’m at my office, watching a live indoor concert with moving lights- blue is the worst for me, driving day or NIGHT and especially driving in the RAIN!! Everyone at my office knows I struggle horribly with this and is sensitive if I have to turn off the lights or hide in my office. I also take preventative migraine meds and meds when I get migraines (which is still about 9-10 times a month depending on the time of year, weather, stress, etc). I have also upgraded all computers to retina display options so everything is as clear as possible and it’s usually set on the dimmest level possible. My husband often thinks I’m reading or working in the dark!!

    I guess the point of this post was to shed some light on a diagnosis for the Costco person who couldn’t get help or anyone else struggling to find an “official” name for this condition. I know I felt a huge sense of relief when I finally had some answers. Obviously my life isn’t perfect but I do know ways to cope and can predict now when and what will happen if I’m not prepared.

    I will stop the typing now. Thanks again for opening up your website and for giving people a place to connect!

    • Welcome Melissa, interesting. I also went to an ear nose and throat Doctor and I did not get a diagnoses like yours. I will do some research on this condition, it is interesting how many different facets there are to light sensitivity, the list of possible causes is staggering! It sounds like even with all the medications you are struggling to live with this issue, sorry to hear that. One question, if you do not mind? Do you have a very direct correlation of your migraines to light or do you have a feeling your migraines are caused by light? For example, when I go to Walmart where they have very bright florescent lighting and very bright white floors I immediately get dizzy, sweaty and my eye’s ache, after 15-30 minutes a migraine is impossible to avoid, what is your experience like? I am wondering if lighting is an immediate direct trigger for your issue?

      Thank you!

      Jesse

  13. Hi there Jesse,

    Thanks for setting up this website.

    Unfortunately I am also suffering from sever eye strain when exposed to LED’s. Unfortunately the LCD based laptop I used is on virtually dead in the water so I took a chance on this Acer one which has an LED backlight and so far I am suffering extreme eye pain.

    I have attempted the suggestions of full brightness but that hasn’t helped. I was just wondering if:-

    1. Anybody has found any new laptops that don’t use LED technology as all the stores I have been to have discontinued LCD.
    2. Is there a setting I can adjust on this LED laptop to prevent the excessive eye strain?
    3. Did any of the flicker free monitors prove effective at resolving the problem?

    Thanks,

    Andrew.

    • Welcome Andy, sorry to hear you are one of us but glad you found us so we can help each other! I will answer your questions to the best of my knowledge:

      1: LED laptops are dominate now however there are computer websites online where you may still be able to aquire an older LCD CCFL style laptop.

      2: Some people have had luck with modifying setting’s, if you get onto the Apple forum post:https://discussions.apple.com/message/26000751?ac_cid=tw123456#26000751 there is a lot of info on technical tweak’s, unfortunately there are 2017 replies so it is hard to search through.

      3: I have not heard one report of a flicker free monitor solving someones problem who has the same sensitivity we do. Some people have more of an eyestrain issue without any other effects and I believe I have read at least one person of the eye strain nature who stated the BenQ monitor was a little better.

      Good luck and stay in the discussion here!

      Jesse

  14. Interesting to read what others are saying. I work in a library and I’m not sure whether the bulbs in the pot lights have been switched over or I just found myself standing under one for a few minutes, but after about a minute I began to feel dizzy. I looked up to see what kind of light it was. I don’t know much about bulbs but would describe it as a mini flying saucer with four or five little circles set up into the pot light. I had to move away from that area and go near a window until my head cleared. I don’t usually suffer any sort of headaches or dizziness. When I see the new blueish porch lights or lights in people’s apartments, I don’t know how they stand them. I think I would be nauseous.

    • Hi Maureen, sorry to hear about your experience. That does sound like an LED light but we cannot be sure without a photo or more details. How are you with LED tail lights and night driving? This could be a good indicator if LED lighting bothers you or not. My symptoms in the first 5-10 minutes are disorientation and dizziness, they get stronger if I do not remove myself from the trigger turning into a migraine. While it is nice to know I can be completely healthy by avoiding Eco-friendly lighting, it does appear the world will be a smaller and smaller place for me. LED is taking over in almost every commercial property I used to visit and cars are now starting to use LED headlights which is much more of a problem for driving than tail lights! Let us know if you have other experiences with computer monitors, cell phones or lighting. Here is a link to a website http://www.mvertigo.org/forum/viewforum.php?f=1&sid=61b5d865f0e4536cc365097ca88fb459 that discusses MAV (Migraines associated Vertigo) that I believe may turn out to be my diagnoses. More on that after my next Neurology appointment.

  15. Great site. Can anyone recommend a phone? I have a droid 4 which doesn’t make me sick like the iphones and the galaxy’s from samsung. When my last droid 4 died I bought another on ebay but its dying. Can anyone tell me what it is that causes theses headaches and nausea. I can’t use any apple product as I have tried them all. I can use a samsung note 10.1 without any problems, but ipads are horrible. Thanks in advance.

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